When you find out you're pregnant for the first time - and you're actually going to keep the child - you read every book that was ever written by anyone who has any kind of experience with children. You're nervous. You fret about everything you ingest. You absorb all the horror stories. You try all the advice. You know... typical new parent stuff. Then you realize that babies are, for all intents and purposes, pretty unbreakable. They're these beautiful clean slates; moldable and malleable. Sure, you have to contend with genetics and all that, but nurture has to have some effect, right?
As I may have mentioned, Liam (The Nugget) was recently diagnosed with ADHD. In my quest to understand everything I can about what's going on in his head, so I can help him navigate the waters of life, I'm reading everything I can get my hands on. The more I read, though, the more guilty I feel. It turns out, despite my best intentions, my boy had the chips stacked against him from the outset.
First, let's talk genetics. The Ex is ADHD, too. He never really outgrew it, as a goodly percentage of children with the disorder won't, but he seemed to have learned how to cope in life. Aside from a severe Peter Pan complex he seemed fairly normal. Or maybe I was just young and stupid, and didn't know any better.
Now let's discuss womb environment. So, Liam already had a potent cocktail of genetics working against him. I'm not proud of this, but I smoked during all three of my pregnancies. I cut way back, but I still smoked. While pregnant with Liam, I was down to no more than four cigarettes a day... until The Ex decided to leave me while I was 7 1/2 months pregnant with Liam. I immediately went back up to a pack a day.
Did I mention that, early in the pregnancy, I contracted bacterial meningitis? Theoretically, the placenta filtered the bad stuff out, but nobody really knows for sure that he wasn't affected.
Now let's get back to the stress and depression I felt during the latter part of my pregnancy. I couldn't eat. I could barely consume liquids (depression does that to you). I ended up losing weight. Combine that with a nasty smoking habit and Liam's womb environment was less than ideal.
When he was born, his APGAR scores were damn near perfect. There was no oxygen deprivation (he was as pink as the shrimp I was so fond of while pregnant with him). The delivery, via c-section, went without a hitch. He was smack dab in the middle of the weight and height ranges. Nothing indicated that he wouldn't be perfectly normal.
So what was different? My pregnancy. The Monkey had the same genetic cocktail to work with and yet he is, at least as far as I can tell, unaffected by ADHD. Hell, I didn't even cut back as much on the smoking while pregnant with The Monkey (which accounts for his birth weight being on the lower end of normal), and I definitely drank a ton of coffee with him. But I hadn't contracted meningitis and I wasn't suffering from a broken heart.
There's nothing I can do about any of this now, short of building a time machine. And I'm all out of plutonium at the moment. What I can do is try to help my boy navigate the waters of life in the context of our new definition of normal.
But the spectrum of normal has shifted a great deal for me. I freeze when I need to address a discipline issue because I don't know what the right move is. I am wracked with guilt and this guilt tinges almost all of my interactions with Liam. My thought processes are frozen in a constant loop of "you did this to him. you did this to him. you did this to him." I want to help him, but I don't know what helping him means anymore.
Intellectually, I know this is bordering on insanity on my part, and probably the result of internalizing far too much of what I'm reading right now. But emotionally, I can't help but feel like I'm treading water.
When you get a diagnosis like this for your child, it doesn't come along with a bunch of handouts about what to expect with your ADHD kid. No. Instead they send you off with the test results and a 504 plan with calm reassurances about reevaluating him again in a year. They don't explain how to intercede when outbursts at the supper table just won't stop happening. They don't explain how you're supposed to be able to tell how much of the behavior is "...an imperfection in the brain that causes the... poor impulse control..." or how much of it is your kid, who is abnormally perceptive anyway, trying to use his ADHD as an excuse to be an asshole. They don't explain to you how to explain to your kid that it's not OK to hug strangers, no matter how much you want to, because other kids will make fun of you. Because, guess what? ADHD kids have a really fucking hard time processing future consequences. In fact, future consequences don't exist in the ADHD world. They don't tell you that part, either.
No map. No directions. You're a foreigner in a new land and you don't speak the language.
So how do you parent that? How do you guide your child through the rapids when your child sees the rapids as just any other body of water. Oh and your kid can't swim, either.
Where's the fucking manual for that?
Showing posts with label the new normal. Show all posts
Showing posts with label the new normal. Show all posts
Monday, March 3, 2014
Wednesday, February 26, 2014
What Resolutions? (A blog about finding out your kid is different)
I feel compelled to blog, though I don't know where to begin. Should I be witty? Should I be candid? Should I just stream of consciousness this post? There's so much and nothing at all in my head right now. But where to start?
The quest to actually follow through on my New Years resolutions has fallen way, way short. Mostly this is because life has demanded my attention be focused elsewhere, and all at once. The people in white lab coats say that the human brain is not capable of actually, literally multitasking. I don't think they did those scans on full time moms with full time jobs. Or maybe my brain is just really good at switching between tasks.
...Which, come to think of it, is not necessarily true. Because I forget a LOT of stuff most of the time. I drop balls like a novice juggler. Hell, I'm not even making decent analogies right now.
Speaking of brains, The Nugget was recently diagnosed with ADHD (inattentive type) and ODD (for those of you who don't know, that's oppositional defiant disorder. The first step on the path to conduct disorder. For those of you who don't know what conduct disorder is, introduce yourself to most of the habitual offenders in our prison system today). I won't even begin to wax knowledgable about either of these disorders, because I'm still learning all I can about these disorders. But looking back on my poor sweet boy's life, in perspective and through the lenses of these labels, so, so much makes sense now.
There's a certain level of comfort in finally having a label for the thing that has made parenting The Nugget for these last 11 years so difficult. He couldn't remember to do basic tasks, like shutting the front door or to change his socks. He was almost four before he was fully potty trained. He was almost nine before he learned to tie his shoes without help.
Then there were the issues at daycare and at school. Every new school year, I braced myself for the onslaught of notes and conferences that seemed to always accompany The Nugget through school. Every week - sometimes every day - there was a new note. Really, though, it wasn't a new note so much the same note on a different day tinged with a growing frustration that The Nugget just couldn't seem to get his shit together.
Before that, it was at least once a week that he was being sent home from daycare because his behavior was just so abysmal the teachers couldn't control him.
And nothing seemed to work to change the behavior. No amount of punishment or reward; begging or bribing would make The Nugget behave. I remember one time, when The Nugget was about four or so, when, sobbing with frustration about being reprimanded again, he wailed, "but Mama! I'm being haved!" For him, he really was trying. He was being his version of "haved". I didn't know then what I know now. And now that I know, the story isn't as cute anymore.
I chalked it up to The Nugget being a boy. The Monkey outgrew all of this behavior, surely The Nugget would, too! Then I chalked it up to the teacher being an asshole, but then The Nugget had some really fantastic teachers and I couldn't use that as an excuse anymore. I clung desperately to the idea that maybe he was just Huck Finn and why on earth would I want to change that? I was in serious denial that there was something actually wrong with him.
And now I have a label; I have a reason for it all. But that label and the reason don't make things any easier. In fact, I have a tremendous amount of guilt in letting it go on for as long as I did before I really truly insisted on getting him tested. Though, letting it go on and letting his record get supremely thick helped us skip right through all the bureaucratic bullshit red tape. We passed go. We collected our diagnoses. He has an education plan which will help get him through elementary school, at least.
Depending on what you're reading, the root causes for ADHD and ODD aren't entirely clear, but they do know that it happens in the brain - whether it's a structural cause or a chemical imbalance is still a matter of debate. They don't know exactly what contributes to these defects - everything from maternal consumption of caffeine and nicotine while pregnant to genetic factors have been cited - but everyone seems to now agree that it's not just teachers and parents looking to medicate kids to the point of zombie-hood.
The Nugget's... actually, let me pause. He deserves to be spoken of as something more than an anecdote. The Nugget's name is Liam... the version of ADHD that Liam has is the inattentive type. We're luckier than some folks there because he really doesn't need medication. He's capable of sitting still. He's capable of focusing some of the time (and only if there are absolutely no distractions). He has some mild tics and socialization issues, but nothing that is considered clinical (just borderline) in that arena. Liam also has a very difficult time processing his emotions in a "normal" way, and suffers a fair amount of anxiety most of the time.
But what makes a disorder like this more difficult for families like ours is there's no outward appearance of abnormality. There's nothing that screams "my child has special needs! Back the fuck off and show him some respect!" because he looks normal. People expect him to be able to operate on the same level as most folks. He just can't. He can fake it. He can find ways to cope in the world. But he will. Never. Be. Normal. And folks will just keep on wondering why the weird kid is weird.
That's a hard pill to swallow as a mama. Especially at this stage of the game. My child has special needs. My child will never be normal. My child will always struggle in the world. My child will always have to work extra hard. My child will often be at a loss to explain why he did something and why it was wrong (or why it was right) and will get in trouble for it. Because he looks normal.
------
I don't know how to sum this post up. It's open-ended, I suppose, because there's still so much left to learn. I'm still grieving for my boy and am still processing all of this information in a space of grief. No, he's not dying - and I am lucky for that! And he doesn't have a terminal illness. But his life is, and always was, inexorably changed.
The quest to actually follow through on my New Years resolutions has fallen way, way short. Mostly this is because life has demanded my attention be focused elsewhere, and all at once. The people in white lab coats say that the human brain is not capable of actually, literally multitasking. I don't think they did those scans on full time moms with full time jobs. Or maybe my brain is just really good at switching between tasks.
...Which, come to think of it, is not necessarily true. Because I forget a LOT of stuff most of the time. I drop balls like a novice juggler. Hell, I'm not even making decent analogies right now.
Speaking of brains, The Nugget was recently diagnosed with ADHD (inattentive type) and ODD (for those of you who don't know, that's oppositional defiant disorder. The first step on the path to conduct disorder. For those of you who don't know what conduct disorder is, introduce yourself to most of the habitual offenders in our prison system today). I won't even begin to wax knowledgable about either of these disorders, because I'm still learning all I can about these disorders. But looking back on my poor sweet boy's life, in perspective and through the lenses of these labels, so, so much makes sense now.
There's a certain level of comfort in finally having a label for the thing that has made parenting The Nugget for these last 11 years so difficult. He couldn't remember to do basic tasks, like shutting the front door or to change his socks. He was almost four before he was fully potty trained. He was almost nine before he learned to tie his shoes without help.
Then there were the issues at daycare and at school. Every new school year, I braced myself for the onslaught of notes and conferences that seemed to always accompany The Nugget through school. Every week - sometimes every day - there was a new note. Really, though, it wasn't a new note so much the same note on a different day tinged with a growing frustration that The Nugget just couldn't seem to get his shit together.
Before that, it was at least once a week that he was being sent home from daycare because his behavior was just so abysmal the teachers couldn't control him.
And nothing seemed to work to change the behavior. No amount of punishment or reward; begging or bribing would make The Nugget behave. I remember one time, when The Nugget was about four or so, when, sobbing with frustration about being reprimanded again, he wailed, "but Mama! I'm being haved!" For him, he really was trying. He was being his version of "haved". I didn't know then what I know now. And now that I know, the story isn't as cute anymore.
I chalked it up to The Nugget being a boy. The Monkey outgrew all of this behavior, surely The Nugget would, too! Then I chalked it up to the teacher being an asshole, but then The Nugget had some really fantastic teachers and I couldn't use that as an excuse anymore. I clung desperately to the idea that maybe he was just Huck Finn and why on earth would I want to change that? I was in serious denial that there was something actually wrong with him.
And now I have a label; I have a reason for it all. But that label and the reason don't make things any easier. In fact, I have a tremendous amount of guilt in letting it go on for as long as I did before I really truly insisted on getting him tested. Though, letting it go on and letting his record get supremely thick helped us skip right through all the bureaucratic bullshit red tape. We passed go. We collected our diagnoses. He has an education plan which will help get him through elementary school, at least.
Depending on what you're reading, the root causes for ADHD and ODD aren't entirely clear, but they do know that it happens in the brain - whether it's a structural cause or a chemical imbalance is still a matter of debate. They don't know exactly what contributes to these defects - everything from maternal consumption of caffeine and nicotine while pregnant to genetic factors have been cited - but everyone seems to now agree that it's not just teachers and parents looking to medicate kids to the point of zombie-hood.
The Nugget's... actually, let me pause. He deserves to be spoken of as something more than an anecdote. The Nugget's name is Liam... the version of ADHD that Liam has is the inattentive type. We're luckier than some folks there because he really doesn't need medication. He's capable of sitting still. He's capable of focusing some of the time (and only if there are absolutely no distractions). He has some mild tics and socialization issues, but nothing that is considered clinical (just borderline) in that arena. Liam also has a very difficult time processing his emotions in a "normal" way, and suffers a fair amount of anxiety most of the time.
But what makes a disorder like this more difficult for families like ours is there's no outward appearance of abnormality. There's nothing that screams "my child has special needs! Back the fuck off and show him some respect!" because he looks normal. People expect him to be able to operate on the same level as most folks. He just can't. He can fake it. He can find ways to cope in the world. But he will. Never. Be. Normal. And folks will just keep on wondering why the weird kid is weird.
That's a hard pill to swallow as a mama. Especially at this stage of the game. My child has special needs. My child will never be normal. My child will always struggle in the world. My child will always have to work extra hard. My child will often be at a loss to explain why he did something and why it was wrong (or why it was right) and will get in trouble for it. Because he looks normal.
------
I don't know how to sum this post up. It's open-ended, I suppose, because there's still so much left to learn. I'm still grieving for my boy and am still processing all of this information in a space of grief. No, he's not dying - and I am lucky for that! And he doesn't have a terminal illness. But his life is, and always was, inexorably changed.
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